I apologize it’s been so long since I last posted. Our days
have been jam packed this summer and any free time is spent in the pool so my
nights which is when I try to blog are spent cleaning up the house.
Not much to update about either. I’ve been feeling well, no better, no worse than a month ago.
This past Saturday was the Boomer Cystic Fibrosis Run to Breathe in Central Park . Due to the weather conditions it was an
untimed run, but it was a great run. I’ve decided to push myself hard and
signed up for the Bronx 10 mile in September.
I have a CF appointment in early August. Hopefully I will
continue to feel well and see some improvement in lung function.
I’ll try to update more often but I’m just having so much
fun with my kiddos this summer!
Hi Karen
ReplyDeleteI understand you are on Kalydeco off-label. I am also trying to get insurance approval for off-label use - I have a residual function mutation - and was wondering if you could provide me with any pointers.
Thanks
Ingrid