Tuesday, July 23, 2013

Quick update

I apologize it’s been so long since I last posted. Our days have been jam packed this summer and any free time is spent in the pool so my nights which is when I try to blog are spent cleaning up the house.

Not much to update about either. I’ve been feeling well, no better, no worse than a month ago. This past Saturday was the Boomer Cystic Fibrosis Run to Breathe in Central Park. Due to the weather conditions it was an untimed run, but it was a great run. I’ve decided to push myself hard and signed up for the Bronx 10 mile in September.

I have a CF appointment in early August. Hopefully I will continue to feel well and see some improvement in lung function.

I’ll try to update more often but I’m just having so much fun with my kiddos this summer!

1 comment:

  1. Hi Karen

    I understand you are on Kalydeco off-label. I am also trying to get insurance approval for off-label use - I have a residual function mutation - and was wondering if you could provide me with any pointers.